Progress

Since weaning off some powerful medications, my painhas returned with a vengeance. I can’t even spell right now. Used to be one of my best subjects, again, used to be. I’ve been having bad nights and days filled with more than overwhelming pain. I refuse to take the narcotics I was prescribed, I weaned myself off of them.

Regions of the cerebral cortex associated with...

Regions of the cerebral cortex associated with pain. (Photo credit: Wikipedia)

I suffer from severe Fibromyalgia and Chronic pain syndrome. I could go through a whole list of my ailments, however, these two are the ones that keep me down. I am going to seek a new doctor to delve further into my pain. I hate seeing the commercials for Lyrica, which I take, but the people in the commercial must have a mild case? I don’t know. I take the allowed dosage of Lyrica, and still am suffering from unmanageable pain.

You might be wondering why I chose to wean off the narcotics. Firstly, they helped, and then I would need a higher dosage. Secondly, I have Chronic Kidney disease, and even taking Ibuprofen is bad for the kidneys. Also I am insulin dependent Diabetic II. My blood sugars are completely under control. A plus for the kidneys. Many people become addicted to pain killers, and end up hurting their bodies. No thanks. That’s why I chose to quit them. I’m afraid to quit the Lyrica, because my pain is already too much, I can’t imagine it getting even worse!

All my life I worked my body to the bone. No pain no gain. Then my syndrome hit me like a ton of bricks! When this happened, I hadn’t any medical insurance, so I was just kind of swept under the rugs by doctors because I couldn’t afford extensive services.

Having medical insurance later, I was diagnosed. I was so sick of seeing this specialist and that specialist. It took most of my time to complete the doctors requests, whilst still suffering in pain. I had two broken ribs, not cracked, but broke and separated. I suffered until one kind emergency room doctor did not care that I hadn’t any insurance, and ordered an MRI. That is how it came to light that for eight months I continued working in horrible pain, to find out my ribs were broken. I had to resign from my job as a nursing assistant because I became a liability at work.

All vacation time I earned at work was used up, not to enjoy myself, but to try to nurse myself back to health. My husband lost his job due to me not wanting to be left alone. I was having panic attacks, and was so afraid I was going to die. We went from middle class to the poverty level in no time. I couldn’t even tolerate a minimum wage job as a cashier, too much pain and sickness. That’s when I sought out an attorney and filed for disability, and was granted that small budget. I’m not complaining, but budgeting the money has to be very precise to live on.

I feel as if I am back to square one now. Dealing with this brings on my depression. That too I have dealt with all my life. My daughter gave birth to my grandchild on Easter, and here I am, stuck with pain in bed. I even hesitate to make a doctor’s appointment, for the thought of actually having to tolerate the pain of the trip and the wait in the office. I’m just so sick of it.

I also will not have a cortisone shot in my spinal fluid! I had a spinal tap with my first child, and an epidural with my second, and often wonder if that’s one reason my back aches in certain places. With both children, I had complications. The first from the spinal tap, the second was an emergency c-section, where they left a sponge in me. As a result, I am unable to bear children anymore. I wasn’t planning on having more, but still, it hurts when it’s taken away from you.

I could go on and on, but I wanted to let my followers know what is up with me! My parents are ready to move to my state, just so they may care for me! Yes, I want my Mommy! She’d take control of these doctors and probably wring their necks! So if you are not seeing me here as much, it is because I am ill. I love you all! You’ve been so inspirational and funny and fun! I will be back, just not as frequently right now.

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12 comments on “Progress

  1. I wish you were not in so much pain…..I will always have you in my thoughts and prayers! Have you read the book “The Secret”? I suggest that you do…..it helped me at least think in a different way!

  2. Joann 😦 I just wan’t you to know that you are in my prayers. My heart aches just thinking about the pain you must be going through. I sent you an email recently. Did you get it? If not, please check your spam folder.

    • I’ve tried it all. I can’t even stretch really good in the morning without having muscle spasms. I didn’t want to rely on narcotics. I get stubborn. My rules, My way. Especially when it comes to my body! Thank you for the words on getting off the narcotics. I don’t want to rely on that to help me. I’d rather suffer. 🙂

  3. I’m so sorry, Joey. I’ve got you in my prayers, always! I feel very fortunate to not have chronic illness, but wish it was the same for you :/

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